View Full Version : Collagen disorder?

11-11-2011, 12:43 PM
Hey all,

This is going to be a very strange post but I figure I'd give it a shot. For the 9 month something weird has been going on with me. I first noticed it in my face, like it was getting smaller or weaker muscle wise. I've since revised this opinion, after tests from neuros etc.

Before I explain, I will also say that I noticed something last year but just assumed I was getting older (I'm 31 now). My recent symptoms are skin and structure changes in my face, hands and feet - more wrinkled, skin looser etc.

My face, basically, has become, for want of a better word, more rubbery, but without the firmness of rubber. Softer. Thinner. My lips have become smaller (my bottom lip, all through my life, has never changed size much, even when I lost 20 kgs). The skin around my cheek bones is sunken and loose. And this seems to have happened all over my body.

And here's something else.. a while back my nose started to feel strange, like it was more mobile. Now I can see why. If I look up my nostrils with a mirror and wriggle my mouth around, I can actually see the cartilage as the skin of my nose moves around. So somehow this skin has become detached from the cartilage? Also, my nose is definitely more mobile - I can gently push it and it moves side to side whereas it never used to do this.

This has affected the rest of my body as well. For instance, I still have most of my hand strength but the because the skin and surrounding structures have become looser it's harder to hold or grip things I used to be able to.

Now, I will say that since the start of the year I have lost 14 kgs - did not change my diet (perhaps slightly, a bit more vegetables but not the amount), did not exercise. Most of you will say 'oh, well of course if you lose that much weight your skin will be loose'. But my counter-argument is that I've been weighing myself for the past 4 months and have stayed at 85kgs - no more, no less. But the skin thinning has gotten worse in the past 2 and a half months while my weight has been stable?

That firmness I originally thought was muscle. But I can still move my face around (perhaps a bit weaker than before). But a lot of the structure and firmness is gone. And this has happened everywhere. I assume this is some sort of collagen issue. Are there collagen issues outside of things like EDS and osteogensis imperfecta, which are genetic and I assume would show up a lot earlier on than this. I assume I'd have to have fairly hypermobile to have either of these disorders but I'm only slightly more mobile in my joints then the average person.

Any ideas?


P.S. If no one has an idea of what's going on, what sort of specialist would I see to discuss this sort of issue? Doesn't seem to be something like cutis laxa, because that seems to affect the outside of the skin more than the inside.

09-10-2014, 11:24 AM
The collagen disease is a disease that affect the immune system.

09-11-2014, 06:23 PM
Hi! Welcome to our forum. Wanna ask few questions. Do you feel weakness over the proximal muscles like arms, thighs. Can you raise your arms above your shoulder level. Do you feel difficulty combing hairs? Do you have difficulty squatting.if possible can you post good picture of your affected skin lesions.

01-09-2015, 05:25 AM
Collagen vascular disease attacks healthy tissues of your body. Fever, muscle weakness, joint pain and skin rash are the main symptoms of collagen disease.

02-14-2017, 08:09 AM
And what does your doctor?